Helpful organisations

If you need further information or advice beyond what Regain offers, explore our curated directory of other helpful charities, advice networks, and useful websites. Like Regain, these organisations are here to support you whenever you need assistance.

Charities

Aspire

This organisation provides essential practical support to people living with spinal cord injuries, focusing on areas such as accessible housing, assistive technology, and independent living. They also provide a dedicated grants programme to help individuals purchase essential equipment, as well as support with housing, benefits and PIP applications.

Back up trust

Delivering life-changing services, this charity helps individuals affected by spinal cord injury build confidence and independence through mentoring, activity courses, and support in returning to work or education. Their services are designed for people of all ages and their families.

Spinal Injuries Association

As the leading national charity for people with spinal cord injuries, they offer peer support, specialist nursing advice, and advocacy to ensure every injured person can live a fulfilled life. They act as a powerful voice for the SCI community in the UK.

Cauda Equina Champions Charity

This charity is dedicated to supporting individuals living with Cauda Equina Syndrome (CES). They provide a vital network for peer support, legal guidance, and medical information to help survivors navigate the complexities of the condition.

Horatio’s Garden

This charity creates and nurtures stunning, accessible gardens in NHS spinal injury centres across the UK. These beautiful outdoor spaces provide a sanctuary for patients and their families, supporting mental and physical well-being during long-term rehabilitation.

Inspire Foundation

This organisation focuses on funding scientific research specifically into the use of technology to improve the quality of life for people living with spinal cord injuries. Their work explores practical solutions to help restore independence and physical function.

Spinal Research

This charity is dedicated to funding international research aimed at developing effective treatments and finding a cure for the permanent paralysis caused by spinal cord injury. They focus on scientific breakthroughs that aim to restore function.

Spinal Injuries Scotland

A specialist organisation providing immediate and long-term assistance, peer support, and information to those affected by spinal cord injury across Scotland. They operate a dedicated helpline and provide support within Scottish spinal units.

Spirit Spinal Injuries Charity

SPIRIT works to improve the treatment of patients with spinal cord injuries in the UK and throughout the world

Stoke Mandeville Spinal Research

This organisation funds research focused specifically on the secondary health complications associated with spinal cord injury, such as pressure sores, urinary tract infections, and neuropathic pain. Their goal is to improve daily health and quality of life for the SCI community.

Wings For Life

A non-profit research foundation with a global reach, dedicated to finding a cure for spinal cord injury. They fund world-class scientific research and clinical trials aimed at healing the injured spinal cord.

Wheelpower

As the national charity for wheelchair sport, they provide grants and opportunities for disabled people to lead active lives through a variety of sporting events and physical activities. They help people of all ages discover the benefits of staying active through sport.

Advice

AbilityNet

A national charity that helps disabled people use technology to achieve their goals by providing specialist advice, digital accessibility assessments, and technical support. They offer a network of volunteers who can provide free tech support at home.

Going for Independence

An organisation providing expert guidance and information on specialist equipment and home adaptations designed to help individuals maintain their autonomy. They focus on occupational therapy solutions for living independently at home.

Citizens Advice Bureau

This service offers free, confidential, and impartial advice on a wide range of issues, including benefits, debt, housing, and legal rights. They are a vital resource for navigating the practical challenges of a life-changing injury.

Useful websites

Euan's Guide

A disabled access review website where users share first-hand accounts of the accessibility of venues such as hotels, restaurants, and tourist attractions. It helps people with mobility challenges plan their visits with confidence.

Motability

A national scheme that enables disabled people to use their government-funded mobility allowance to lease a new car, scooter, or powered wheelchair. The scheme includes insurance, maintenance, and breakdown cover as part of the package.

Turn2us

A national charity providing financial support to help people in hardship gain access to welfare benefits, charitable grants, and other financial services. They provide an easy-to-use benefits calculator and a search tool for local grants.

Department of Work and Pensions

The government department responsible for welfare and pension policy, offering information and access to financial support and disability benefits. This is the primary contact for Personal Independence Payment (PIP) and other state support.